What Will It Take for Wellness To Finally Leave Behind Its Ableist Origins?
For decades, the concept of ‘wellness’ has been perceived as an elitist trend that has come to encompass a certain lifestyle, whether it’s practised for spiritual or physical improvement. Despite this, few are aware that the trend harks back to a time when it was used to impose the language of ableism.
The term ‘ableism’ was first used by disability rights activists in the 1980s to describe the discrimination faced by disabled people and the oppressive narrative that able-bodied people were considered ‘normal’. This narrative quickly found a place in wellness culture, where people were encouraged to strive for physical perfection and label physical disabilities as someone’s ‘weakness’.
For wellness to leave behind its ableist roots, it is essential to primarily shift our perception of what it means to be ‘well’. Society must recognise the importance of mental wellness and wellness of the soul in addition to the physical aspects of wellness that are often over-stressed. A move towards a much more holistic approach is needed, where wellbeing is about creating emotional stability. By recognising that wellbeing extends to an individual’s whole being, we can begin to recognize that people with disabilities can also be reached with a greater level of wellbeing.
In contrast to the current trend, which focuses on physical perfection, a healthier perspective would encompass the notion that everyone is unique, regardless of the degree of health. This means a recognition that disability may not be a sign of weakness, but simply another aspect of a person’s wellbeing. Far from being seen as an impediment to a healthy lifestyle, disability could be seen as a positive representation of individual strength and an opportunity to find different ways of being.
Finally, it is essential to acknowledge that wellness is not just a physical state, but involves the individual’s emotional, spiritual and social life. An aware, inclusive and well-thought-out approach to wellness must include the disabled and chronically ill community, whose voices too often go unheard. The recognition of this community must involve educating those in the wellness industry and society, challenging the traditional view of disability, incorporating diverse narratives of disability in teaching and work and including this community in relief and social welfare programmes.
For true progress in the wellness industry, we must move away from our ableist origins and truly embrace a holistic and inclusive definition of wellness, one that recognises the value and individual strength of everyone. [ad_1]
After being diagnosed with debilitating psoriatic arthritis, Nitika Chopra wholeheartedly embraced wellness culture. She sought healing through holistic methods like acupuncture and “clean eating” and gobbled up self-help texts like The Secret and the works of Deepak Chopra (no relation).
For a time, Chopra embraced the idea being peddled to her by the “thriving” individuals in her wellness circles: that she could become as healthy as they were through perfect thought and action. But despite her best efforts, at just 25 years old, Chopra found herself bedridden and unable to audition for the role of a lifetime. Mantras and affirmations, it was clear, were no match for her autoimmune condition.
It was a turning point for Chopra, who would go on to found Chronicon, a community for folks with chronic illnesses. In deciding to let go of the pressure she’d been putting on herself to self-heal and instead consult a doctor, she also realized that the message she’d been internalizing—that her inability to get well was a personal failure—was harmfully ableist. She came to accept that she was, and would likely remain, chronically ill through no fault of her own, and that she had been gaslit by some segments of wellness culture into feeling otherwise.
This idea that good health is both a personal responsibility and a moral obligation is what’s been called “healthism,” a term attributed to political scientist Robert Crawford, PhD. In 1980, Dr. Crawford wrote an article for the International Journal of Health Services called “Healthism and the Medicalization of Everyday Life,” in which he defines the term as “the preoccupation with personal health as a primary—often the primary—focus for the definition and achievement of well-being; a goal which is to be attained primarily through the modification of life styles, with or without therapeutic help.” Dr. Crawford writes: “For the healthist, solution rests within the individual’s determination to resist culture, advertising, institutional and environmental constraints, disease agents, or, simply, lazy or poor personal habits.”
As Chopra discovered, healthism disproportionately harms individuals with disabilities and chronic illnesses, for whom “perfect health,” as defined by limited cultural standards, may never be a possibility. But this way of thinking didn’t begin in the ‘80s: It’s been integral to modern wellness culture from the beginning.
The past and present of healthism in wellness culture
Americans’ pursuit of health began to resemble a version of wellness culture we recognize today—with a focus on using lifestyle behaviors and alternative healing practices to prevent illness—sometime around the late 19th century, when some Christian sects began to preach healthy living as a virtuous way of life. Even in these early days, the idea that in order to be “good” you had to aspire to perfect health was baked into the American definition of wellness, says Matthew Remski, co-founder of the Conspirituality podcast, which examines the overlap between New-Age spirituality and alt-right beliefs.
One famous Adventist doctor, John Harvey Kellogg, MD (his brother launched the cereal brand), took this ideology to the extreme in the early 1900s by creating a dogmatic program called “biologic living.” Physician and medical educator Howard Markel, PhD, MD, credits Dr. Kellogg, along with his brother Will, with “introduc[ing] and mass-market[ing] the concept of ‘wellness’” in his book The Kelloggs: The Battling Brothers Of Battle Creek.
While Dr. Kellogg was ahead of his time in many ways—he believed gut health played a significant role in well-being, for example, and was one of the first doctors to focus on disease prevention, through diet, exercise, and other lifestyle change, rather than treatment—his tendency to moralize wellness led to several harmful (some might say abhorrent) perspectives. He believed without evidence, for example, that masturbation led to a number of ailments and took extreme measures to prevent it, including removal of the clitoris.
Another American of the same era, Bernarr Macfadden, also espoused a morality-based wellness ideology. He billed himself as a “teacher of physical culture” and built an empire around his health-related beliefs that included books, spas, and a number of magazines, including one of the world’s first fitness publications, Physical Culture (the slogan of which was, “Weakness is a crime. Don’t be a criminal!”). Like Dr. Kellogg, Macfadden believed wellness was within an individual’s control and that those who couldn’t become well were inferior, immoral, and should be weeded out of the human race.
While some of these ideas were quite fringe, both men had enthusiastic and prominent followings. The wellness mecca Dr. Kellogg directed, called the Battle Creek Sanitarium, drew luminaries of the day, such as John D. Rockefeller, Jr., Amelia Earhart, and Sojourner Truth. And Macfadden was such a big name that he attempted to run for president, and eventually became one of America’s top publishers. “They were popularizers—early trailblazers who laid the foundation for what later became mainstream,” says Petrzela.
Petrzela says the ideologies put forth by these early wellness pioneers caught on in the United States at that time largely because they aligned with the Protestant work ethic of “working to show your salvation.” In this case, she says, the godly was bodily discipline.
It’s no accident that some of the most famous wellness figureheads of today are hyper-successful individuals who evangelize their wellness behaviors as helping them “do it all.”
Despite a century’s worth of evolution, today’s wellness culture has not been able to shed its original guiding philosophy: that the pursuit of health is a moral and individual one. Neoliberalism has simply shifted the specific moral imperative for pursuing health away from god (or country, as was the prevailing ideology in other parts of the world) to capital.
It’s no accident that some of the most famous wellness figureheads of today—think Goop guru Gwyneth Paltrow or bio-hacking pioneer Dave Asprey—are hyper-successful individuals who evangelize their wellness behaviors as helping them “do it all.”
“It’s like [essayist] Jia Tolentino says, ‘Always be optimizing,’” says Christy Harrison, MPH, RD, author of The Wellness Trap, of hustle culture. We’re led to believe that, in order to add value to society, we must “always be pushing for greater and greater wellness—fasting more and taking more supplements and doing more cold water baths or whatever—to try to get that extra level of mental sharpness that’ll help you work that extra hour in the day,” she says.
Wellness culture’s focus on individual habits is uniquely ableist
Healthism’s framing of well-being as a series of correct choices perpetuates the idea that if you are ill, it must be because you made incorrect choices.
But data does not support this philosophy. According to Harrison, “When we look at the research on population-level health outcomes, we see that 10 percent of modifiable risk factors are attributable to diet and exercise, 70 percent are attributable to social determinants of health—which are the conditions in which you live, your socioeconomic status, your food security, discrimination you may experience, job security, things like that—and the other 20 percent are individual behaviors like avoiding smoking and safe sexual health practices.” And of course, she adds, genetics play a significant role as well. “A lot of people have genetic conditions they were always going to get no matter what they did,” Harrison says.
When the reality is that not everything can be healed, it’s psychologically harmful to preach not only that it can, but that it’s an individual’s fault if they remain unwell, says Zoe Mckenzie, a physiotherapist and certified trainer who created the platform Actively Autoimmune to provide a supportive exercise plans for people with invisible illnesses. (Her Actively Studio includes a “Bed Pilates,” program, for instance, that can be done fully horizontal.)
“The narrative that health is fully in our control, when a lot of health conditions and disabilities are not, puts a lot of pressure on people and can make them feel a lot of guilt if they aren’t able to become the best, healthiest version that everyone says they should be able to become,” says Mckenzie. “It also implies that we’re not trying hard enough to ‘get better.’”
Such hyper-focus on individual control over well-being also discounts systemic causes of poor health. America’s systems are not well positioned to help anyone in need, but they make life especially difficult for those who are living with disabilities. After all, no amount of wellness practices will help someone who needs and can’t access expensive medical treatments that are necessary to manage their chronic illness or disability. Nor will diet and exercise (let alone sauna treatments and daily affirmations) help to financially support an individual who is unable to work.
“The reality is that most people who are disabled cannot just do everything they set their mind to because of structural systemic barriers,” says Lindell.
The wellness industry was built to serve those who are already well—and shuts out those who are not
The wellness industry has earned its reputation for being expensive—one $45 spin class, $15 juice, and $60 jar of supplements at a time.
“Finances are a huge barrier to disabled people accessing the wellness world,” says Mckenzie. “Exercise programs, diets, specialist advice, coaches: That is just very out of reach for a lot of people living with disabilities or chronic conditions…Perhaps they’re living off benefits, or they’re unable to work or, you know, it’s just so expensive to live with a health condition between medications and treatments and health insurance.”
It also takes a significant amount of time and energy to research wellness treatments (and to become an educated patient in general), Mckenzie says, and those are two things that those with chronic conditions or disabilities are not likely to have in excess, either. Therefore, people from these communities are often excluded from wellness, even though they’re the ones who most stand to benefit from its offerings.
“The message we are told is that there’s this one person who has this one body type who goes to this one particular type of class who eats this one particular type of food, and that is what wellness looks like,” says Chopra. “So then many of us automatically assume that we can’t be a part of it.”
The images projected by the wellness industry do little to dissuade this assumption. “When we see wellness being represented to us, it’s usually in this very sleek manner—workout clothing on happy people, and their hair is pulled up and they’re running as if they’re going through a valley, but instead it’s to the gym or to yoga or Pilates,” says disability rights activist Andrea Dalzell, RN, who is the first wheelchair-using registered nurse in New York. “We don’t often think of someone who uses a wheelchair or mobility device being brought into wellness, and therefore there’s no representation of what that looks like.”
When you do see people with disabilities represented in these spaces, it often puts forth “the disabled superhero” stereotype, says Lindell. “Most of the time, when you see the wellness industry featuring somebody with a disability, which is very rare, it’s through the trope of inspiration porn,” she says—a Paralympian atop the podium being a classic example. “This prevalent trope reinforces the idea that anyone can do anything they set their mind to, and that’s extremely harmful for disabled people,” she says.
This message also reinforces the way American capitalism ties productivity (our old friend!) to personal value—it’s only hyper-productive folks with disabilities who get air time.
Lindell aims to improve disability representation, in the wellness space and beyond, with the launch of a new agency called Misfit Media. “Eighty percent of the representation we see in media, marketing, and entertainment is through the harmful use of stereotypes that disabled people are actively trying to avoid,” Lindell says. “I’m helping brands become more inclusive so they are including disabled people more but also in ways that don’t harm us.”
How advocates are working towards a more inclusive future
The current wellness movement, says Mckenzie, assumes that everyone has the same goal of striving to be the best and healthiest version of themselves. “But some people are just trying to survive,” she says.
What it means to live “well” and the goals of wellness need to expand to accommodate this reality. Our singular, idealized image of perfect health (you can picture her: the thin, able-bodied, uber-successful wellness maven who fits in a Peloton ride at 5:00 a.m. before working a full day and then feeding her kids a nutritious dinner and tucking them into bed) must be replaced with individualized definitions of wellness that take into account inevitable, unavoidable, and often incurable health conditions. The wellness goal for some people may be to “slightly improve their quality of life or change their mindset,” says Mckenzie.
“There are different spectrums of wellness,” agrees Chopra. By including folks with disabilities in the wellness conversation and, indeed, evolving wellness to better suit this community’s needs, we’d be creating a version of wellness that better serves everyone.
Take, for instance, the emphasis fitness and wellness culture places on pushing yourself to the limit. When it comes to exercise, we’re led to believe, you need to go hard, or go home. But that approach can actually be harmful for many individuals with disabilities, whose conditions can be exacerbated by physical stress, both Lindell and Mckenzie point out. For many people, rest may be the healthiest wellness behavior in which they could engage, but rarely does the culture emphasize or celebrate it as such. Shifting to a definition of wellness that is more accepting of ease and rest, therefore, would be a boon not only to people with disabilities, but to all overworked and burnt out Americans.
Chopra says she wants to see disability being celebrated within wellness spaces. She likens the chronic illness movement to the body acceptance movement: The same way there has been a shift towards greater inclusion and representation of more body sizes, “I want [those with chronic illnesses] to have our own movement that’s about celebrating us and not about changing us,” she says.
“I want [those with chronic illnesses] to have our own movement that’s about celebrating us and not about changing us.”
Nitika Chopra, Founder of Chronicon
Photo: Laurel Creative
To push this mission forward, Chopra hosted the inaugural Chronicon summit in New York City in 2019. Hundreds of people joined together for a day of uplifting panel discussions and networking among others who identify as being within the chronic illness community. A year later, Chropra pivoted Chronicon to become a digital community, and it quickly grew to be one of the most empowering corners of the internet. (“Let’s honor ourselves, our bodies, AND our right to feel freaking awesome,” the website says.) “These are the most incredible, resourceful, smart, strong, talented people I have ever met,” Chopra says of the Chronicon community.
Lindell, meanwhile, has aspirations to make fitness and wellness spaces feel safer for people with disabilities by creating workshops that teach fitness instructors how to better accommodate individuals with disabilities in their classes. “I hated exercise so much [when I was growing up] because traditional fitness classes made me feel like an outsider,” she says. “I want to make exercise fun and accessible for every single person.”
Two organizations in the fitness space that are currently servicing the nuanced needs of folks with disabilities: Mckenzie’s Actively Autoimmune and the Axis Project, where Dalzell is VP of operations. The Axis Project provides gym space and specialized training sessions for elderly folks and people with physical disabilities.
Lindell is also continuing to use her platform to advocate for people with disabilities while educating about the harms perpetuated by ableism within wellness. “I think the first step is understanding the history of ableism and why we have certain views of disability,” she says. “Then we can really start to undo some of that [harmful stereotyping].”
Chopra agrees that shifting the mindset around what it means (and looks like) to be well is key to creating a society where people of all abilities are set up to find the tools and support they need. “The conversation around wellness [is so often] about being content, about overachieving, about thriving. ‘Thriving’ can be so triggering for people who are chronically ill…because we aren’t usually who you think of when you hear the word,” she says. “It can’t be that you are just totally taken out of the conversation of wellness because you’re dealing with your health in some way.”
Currently, one in four adults in the United States have some sort of disability. And what’s more, not a single person on Earth will remain in perfect health forever, Harrison points out. Wellness culture needs to embrace this reality so that it can actually promote well-being under any circumstances. “I think we as a society could be more open to accepting that people get sick and get old and die and have disabilities,” says Harrison. “Because then the world would be a much more hospitable place for the disabled.”